The term hospice was used long ago to refer to a type of lodging for travelers. Hospices were places where they could find rest and comfort during their journeys. Today hospice refers to a concept of compassionate, end-of-life care for people in the final phase of a terminal illness.
If you are ill and have a life expectancy of 6 months or less, hospice may be a better choice for your care than a hospital. Your healthcare provider, other healthcare professionals, family, friends, or clergy may make the referral to hospice.
Hospice seeks to neither hasten nor postpone death. The emphasis is on quality of life and dignity. Hospice recognizes your social, emotional, and spiritual needs as well as your physical needs. The hospice staff can help prepare you for a peaceful death at home or in a homelike setting.
Hospice care is provided to both you and your family. All of you are involved in making decisions with your healthcare provider and hospice staff. Whenever possible, you are encouraged to make decisions about your treatment, relationships, and personal business. You will also be encouraged to voice your preferences about burial and memorial services. After your death, grief counselors will give counseling to your family.
A team of trained professionals provides hospice services. The team includes doctors, nurses, chaplains, social workers, physical therapists, home health aides, pharmacists, dietitians, grief counselors, and volunteers. The team members work to address your medical, emotional, psychological, and spiritual needs as you near the end of your life.
Pain control is one of the skills that the hospice staff specializes in. Most patients want to have their pain controlled in a way that still allows them to be alert enough to participate in some minor activities. The hospice team will work with your physician to ensure that you are as comfortable as possible. Having your symptoms controlled will help you have a better quality of life.
Most hospices are available to help with your needs day or night, 7 days a week. Typically, care is offered at home. It is also offered in nursing facilities or a hospice house. The hospice house may provide either a residential level of care (as though it were your own home) or an inpatient level of care (as though you were in the hospital). Sometimes, local hospitals have rooms set aside as hospice rooms. Depending on your need, you may stay in one or more of these places and receive hospice care.
Studies have shown that hospice care often costs less than conventional care during the last 6 months of life. Hospice care focuses on providing comfort at the end of life. In contrast to conventional care, hospices do not try to cure the illness. Hospice care does not use a lot of expensive high-cost technology. Some tests are done to make sure hospice staff are doing all they can to provide comfort, but often they stop any tests or procedures that are not going to make a significant difference in how much longer you will live. All of this reduces the cost of care.
Hospice also relies on family and friends to provide much of your daily care. Volunteers may help the family with chores or errands. Volunteers may also sit with you while your caregiver takes a short break. Using family, friends, and volunteers helps reduces the cost of care.
The rules for enrollment may be different from one hospice to another. Some programs offer prehospice counseling to people who have been diagnosed with a terminal illness. For more information about hospice or to find a hospice in your area, you can contact:
National Hospice and Palliative Care Organization
Hospice help line: 1-800-658-8898
Web site: http://www.nhpco.org